Tuesday 18 January 2011

Its big its clumsy and it needs a shake up!

This is my opinion of the world of disability in general.

One of the unique priveledges of running Rackety's disabled clothing is that I get to talk to families all over the world who live with disability. It is fascinating, inspiring and frustrating to hear so many stories about how my customers cope with their unique families.
Sadly the story I hear most is of a constant battle against the system that has evolved to support their needs. It seems to be a recurrent theme that the system is too complicated, there are far too many people asking for the same information all the time, no clear starting point or continuity one you get into the system.
Although it is understood that those envolved are as individuals doing their best it is the collective effect of a clumsy complex system that causes the frustration. I often hear parents telling me that they are told what they can have or do, and that all they want is someone who will listen to what they need.
Thanks to the internet I believe that Parent Power is the way to make sure that the future is made easier for families who live with disability, as already demonstrated by groups such as Special Kids in the UK.
So if we all start to shake a bit more and be vocal on the subject maybe in time we can help to simplify the lives of families in the future.

Thursday 6 January 2011

George HATES Rackety's!

This week I have had two lively conversations with different Mums who's sons like to strip off or put their hands in their pants. Both have commented on how inventive they have had to become constantly trying new combinations of clothing to outwit their determined boys!

One Mum explained that her son George hates anything from Rackety's because he knows he can't get them off, apparently accompanied by a knowing look of puzzlement that appears on his face. His Mum confessed she was secretly delighted to know he would not get his own way and despite his frustration was thrilled to have found that the clothes work for her, even if they don't quite work out for George!

We have loads of families grappling with stripping and dipping, it is the most common thing we help families to overcome. Its often a great relief for families to realise they are not alone with this particular habit. Why not tell us your stories, we won't be shocked at all, and you may be able to help another family.

Send your story to me on annabel@racketys.com
Happy New Year.